Friday, June 8, 2012

CHOP Day 5

I did not want to be late posting again so I am fighting to keep my eyes open just to update all you Henry fans...

Nah... I am not that noble...

Henry is cranky and I have to stand next to him and hold his hand to keep him calm...

He just started being fed Pediasure through his g-tube, so hopefully hunger will be eliminated as a reason for his fussiness...

We will feed very slowly for the next 16 hours to make sure his tummy does not get too gassy, and then I get to start practicing on the kinds of tube feeds he will get at night...

It's funny, one reason I became a lawyer and have my babies at home is because I hate needles and blood and all things medical...

And God sends me Henry who has been hospitalized 4 times in the 8 months (tomorrow!) he has been home!! And I have to deal with feeding him through what is essentially a hole in his tummy...

God likes to stretch us...

Don't snap me Lord I am learning to bend with you!!!

Good night all! I am not sure how Henry is going to sleep in the upside-down position he has chosen at the moment... :-)

10 comments:

  1. aw, poor little bubs :( And poor mama! Sending up prayers for you both.

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  2. sweet babe, even with the nasal trumpet <3

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  3. what a trooper! hang in there, Henry!

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  4. Oh, that sweet boy… How I am glad you are there to love on him. God keep him safe and give him a speedy recovery!!

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  5. Oh I'm praying for stamina for you and rapid recovery for Henry. I am glad to hear that you holding his hand is keeping him calm. Good sign!!!

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  6. You are a brave and amazing Mom!!! God bless you and your son Henry. Hugs and prayers.

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  7. So true about God stretching us!
    Hoping Henry recovers quickly!

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  8. You will manage, and your little man will keep amazing you. It isn't fun, but you've got the best motivation in the world; love.

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